Every now and then my brother knocks my socks off by showing me a skill I never thought he would master!
Motivation for finding his favorite football game on TV was a big enough kick in the pants for him to learn how to speak clearly to say "N-F-L" into the voice activated remote.
Anybody who knows anything about Down syndrome, knows that understanding speech patterns in persons with Down syndrome can be difficult.
Voice activated controls are usually not an option, but HE DID IT!
Moms & Dads - Keep going. Keep pushing through, especially when others say "no way". Your gut knows what is possible and as a special needs sibling, I can say with confidence that your other children will LOVE you even more for pushing their siblings to always go farther than others expect.
I began the story above, from my car, sharing with you how I just finished my annual financial planning meeting, as a mom and special needs sibling.
Please excuse the tears about half way through the story of me sharing about an email that a special needs mom sent me while I was sitting at that meeting... all the emotion just hit me when I was thinking about her and her family's future.
She's experiencing the same thing I experienced MANY years ago when I decided that NO boss or company was going to limit my families financial stability.
I would take charge of our finances - because that's what special needs moms do, right? Take charge.
I have my brother with Down syndrome in his 40's, a dad who passed of cancer, a mom who had a triple bypass a few years ago, on top of a daughter who is recovered from severe Epilepsy, and an older daughter who needs my attention with all the crisis that is always happening - did I mention I'm a single mom and sole provider for my family? ...
There's so much to track in an IEP!
So let's break it down and just tackle one step today.
It's time to know your child's reading level.
Watch the video, take notes and ask questions HERE in our private FB group.
I can't wait to help you feel confident that your child is leaping book to book making progress!
Have questions about your child's IEP, beyond just reading? ASK HERE
Believe it or not... Parents & Teachers & Therapists all struggle with IEP meetings.
I know, Parents, you are thinking that you are the one that has 12 people around the table who all "know what they are doing", but I'm going to let you in on a little secret... not all teachers & teams feel confident at the IEP meeting.
In fact, after working with both parents and teams for over 20+ years, and having been a teacher myself AND having a brother with Down syndrome... I can confidently say that nobody feels 100% sure at the IEP table. I mean the stakes are HIGH, we all have to work together to build an awesome education for an exceptional student.
The pressure is ON at these meetings and everyone knows it. So you lose sleep, get hyped up on caffeine and then fuel yourself with determination to do what's needed for an extraordinary child to LEARN.
So what should we do?
Prioritize and Prepare - the best we can.
So before your next IEP meeting - Do...
I’m a proud special needs sibling.
My brother has Down syndrome.
I fight with my brother. I cry with my brother. I tease my brother. I laugh with my brother.
My brother needs both you and me to be patient. Speak clearly and slowly. Allow him time to do things on his own.
He understands more than most realize. Watch out. He’s listening to you. He learning from you.
The biggest thing you need to know about how to treat my brother... be kind. I’m not far behind.
#spedteacher #specialneedssiblings #downsyndrome#bekindtooneanother
Meet Jessica Kong! She's a special needs sibling (I didn't know that before this interview), a special needs parent and an IEP COACH!
Jessica completed the IEP Coach mentorship and is helping parents and IEP teams find solutions that WORK. (Find out more how you can become an IEP coach here.)
She shares how she uses a $1 book from Walmart, a luggage tag to help her son remember things, and how she got her IEP team to share information with her DAILY!
If you want to reach out to Jessica, you can send her a message through FB, click here.
If you're ready to learn how YOU can Become an IEP Coach... START HERE!
Special Needs Parents & Special Education Team,
It's time to let go of perfection and take the stress off of yourself for creating perfect days with perfect outcomes. Watch this video to find out what you can do instead of crushing yourself with pressure every day.