Insider thoughts as a special needs sibling

Uncategorized Oct 20, 2018

I’m a proud special needs sibling.

My brother has Down syndrome.

I fight with my brother. I cry with my brother. I tease my brother. I laugh with my brother.

My brother needs both you and me to be patient. Speak clearly and slowly. Allow him time to do things on his own.

He understands more than most realize. Watch out. He’s listening to you. He learning from you.

The biggest thing you need to know about how to treat my brother... be kind. I’m not far behind.

#spedteacher #specialneedssiblings #downsyndrome#bekindtooneanother

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Please Delete this IEP Goal

"I knew in my gut that my child shouldn't be working on coins, but I didn't know how to tell the teacher. That goal needed to be DELETED. We needed to move on to skills my child REALLY needed for his future." -Tracey, Special Needs Mom

Tracey's story of how she began to flip her child's IEP for the future started when she began to ask herself the tough questions about IEP goals. 

She started to ask herself - Does my child really need this skill to live their best life? 

And then she continued by asking - Do I even use this skill as an adult? 

Hint: If you're ever reading an IEP goal for your child (or student) and think "I don't even know why my kid is learning this, I don't use this skill to get through my day"... It's time for the goal to go away.

Tracey emailed the teacher and had an honest conversation about what her child's IEP needed to look like if it was going to work. She had a ton of talking points to work WITH the teacher, not...

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IEP Coach Q&A - Data & Simple Team Communication Solutions!

 

Meet Jessica Kong! She's a special needs sibling (I didn't know that before this interview), a special needs parent and an IEP COACH!

Jessica completed the IEP Coach mentorship and is helping parents and IEP teams find solutions that WORK. (Find out more how you can become an IEP coach here.)

She shares how she uses a $1 book from Walmart, a luggage tag to help her son remember things, and how she got her IEP team to share information with her DAILY!

If you want to reach out to Jessica, you can send her a message through FB, click here. 

If you're ready to learn how YOU can Become an IEP Coach... START HERE!

 

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Give Yourself Permission to Give Up Perfection

Special Needs Parents & Special Education Team, 

It's time to let go of perfection and take the stress off of yourself for creating perfect days with perfect outcomes. Watch this video to find out what you can do instead of crushing yourself with pressure every day. 


Next Steps:

1. Become an IEP Coach! Learn more about how to learn to be the IEP Coach your community NEEDS! 

2. Online IEP Help for Parents - Start Here

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[Video] Ask an IEP Coach!

 
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Celebrate Your Way & Keep Your Blinders On

specialneedssibling Jul 04, 2018

Holidays... I get it. As a special needs sibling, I used to watch my mom put cotton in my brother's ears when the noise was too much. His little ears (that's a trait of Down syndrome) just couldn't handle the noise. I literally can remember her pulling cotton out of a clean diaper in her bag one day because she forgot the cotton balls. She was so resourceful in making sure that my brother's ears didn't hurt when the noises were too much.

So I say to you... as a special needs sibling and a mom of a child has severe allergies (which means I walk around with bags of our own food, even on holidays).  I love you. To the Special Needs Family who is home this holiday, not going to BBQ's, not going to festivals, not going to fireworks because it's more work than fun...you are not forgotten.

Be you this holiday. Be proud. Put your blinders on and don't worry about how others are celebrating. Find your own way to celebrate and find the joy in the little moments that matter most.

Your are...

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